The Cure FA Soirée team
proudly announces

The 2024 Soirée sent
$483,000 to FARA!

32 people with FA attended

34 families of people with FA
attended from 14 states,
Canada, & Czech Republic

300+ people attended

People watched online from
Belgium, Canada, French Guiana,
Netherlands, Norway, & Poland

See all Soirée pics
& upload yours:
pics.curefasoiree.org

Did you watch online?
Please tell us where you watched & with whom:
info@curefasoiree.org

and

Edmond Life & Leisure recently published a story about the Gehr family and the Soirée team’s work on the annual Cure FA Soirée: “Michael Gehr was not yet 16 when he got his crushing diagnosis: Friedreich's ataxia (FA), a degenerative neuromuscular disease with no treatment, that would rob him of the ability to walk and sing, and would likely shorten his life by half. Michael and his family knew they had work to do.”

Read more

the Friedreich’s Ataxia Research Alliance

7 Soirées: $1.5 million to FARA!

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